Skip to main content

More King George III

On that same note about King George III, we had another recent occurrence. that gave the APF and porphyria more publicity. Recently, the movie, The King's Speech, was the story of one of the heirs of King George who became King after his brother abdicated, "for the woman he loved." He was the grandfather of the present Queen Elizabeth. Remember that story!!!

Several years ago , producers of the movie called us regarding the porphyria connection to the royal family. The King has a stammer, so they wanted to know if pophyria was a cause. I told them this was another family issue.

Regardless, they gave the APF credit in the movie credits. Which reminds me, we have had more television exposure than any other rare disease. If you watch HOUSE, you will have seen porphyria featured many times. To illustrate , here is a list of shows below, as well as two movies:
*The Madness of King George (1994) & (2005) Movie
* The King's Speech ( 2010) Movie


*House, Honeymoon, Season 1: episode 22

*House, Fools for Love, Season 3: episode 5 (mentions porphyria)

*House, Finding Judas, Season 3: episode 9

*House, Don’t ever Change, Season 4: episode 12 (mentions porphyria)

*House, Guardian Angels, Season 4: episode 4 (mentions porphyria)

*House, Whatever it takes, Season 4: episode 6 (mentions porphyria)

*House, Itch, Season 5: Episode 7

*House, Emancipation, Season 5: episode 8 (mentions porphyria)

*House, Let them eat cake, Season 5: Episode 10

*Scrubs, My Ocardial Infarction: Season 4, Episode 13

*Scrubs, Kelso’s last stand,Season7: episode 9

*Scrubs, My Dumb Luck, Season 9: episode 7

*Scrubs: Outta here like Vladimir: Season 8, Episode 4

*CSI Las Vegas, Justice Served Season 1 Episode 21

* CSI Las Angles, Once Bitten , Twice Damned Season 2 Episode ?

*ABC News Specials, Medical Mysteries Series, episode 2*

*ABC News Desiree Lyon interview

*ABC Prime Time CEP segment

*Mystery Diagnosis, The Sickest Patient in the Hospital and Terrifying Tremors, Season 5

*Mystery Diagnosis, The Boy Who Kept Swelling, Season 6 episode 6

*Mystery ER, Seeping through the cracks/Purple Haze, Season 1: episode 3

*Secret History: Purple Secret in Search of Royal Madness, Season 6: episode 6

*Montel Williams: Porphyria with Lauren Warren

*Montel Williams, Rare Diseases, Leppert Family

*Travel Channel, Documentary Romania

*Learning Channel Dec 09 Porphyria, another myth in the making.

*Fox News Desiree Lyon interview

*Fox News Vampires , A Medical Myth Nov 2009

*Fox News King George, Madness or Arsenic July 2005

*BBC news Desiree Lyon

*Sanjay Gupta CEP patient, Kasey Knauf CEP

*Anderson Cooper 360 CEP

*CNN documentary on CEP patient, Kasey Knauf

*CNN interview Desiree Lyon (CNN HERO)

*Dr. Oz EPP patient, Craig Leppert

*National Geographic; Feb 2010 Six Ways to Stop A Vampire

*Court TV

*Gray’s Anatomy, Time Warp Season 6 episode 15

*Castle, , Vampire Weekend, Season 2 , Episode 6


Parade Magazine, Desiree Lyon Howe story

Parade Magazine, Porphyria, Rare Disease Feature

New York Time Magazine-Sunday, Perplexing Pain : Porphria Article


Popular posts from this blog


GLOBAL PORPHYRIA ALLIANCE The APF is proud to support our members that live across the globe. Many countries around the world have developed organizations to support their local communities. We hope that enjoy the same opportunity to communicate with one another, develop friendships, and learn about porphyria. Here are links to patient advocacy groups worldwide that offer support to individuals impacted by porphyria. Argentina: Centro de investigaciones sobre porfirinas y porfirias | More informationAustralia: Porphyria Association, Inc. | More informationBrazil: Associação Brasileira de Porfiria | More informationCanada: Canadian Association for Porphyria | More informationColombia: Fundación Colombiana Para La Porfiria | More informationDenmark: (Porphyria Association Denmark)Denmark: (Danish Porphyria Support Group)England: British Porphyria AssociationFinland: Finnish Porphyria Support Group France: Association Française des Malades Atteints de Por…


What could it be?
Nerve Pain WHAT IS NEUROPATHIC PAIN? Neuropathic or nerve pain (NP) is a long-term or chronic pain disease that results from nerve damage. It can be caused by different diseases or conditions. Worldwide nerve pain affects as many as 26 million people. Neuropathic or nerve pain may affect larger areas of the body or it can be restricted to a smaller area, in this case it is called localized neuropathic pain (LNP). WHAT CAUSES NEUROPATHIC PAIN? Neuropathic or nerve pain may occur in the absence of an obvious visible cause (e.g. an accident, an injury, a chemical burn). There are several external situations that can directly damage nerves and lead to neuropathic pain, such as: Amputation of a limb (phantom pain, stump pain)Surgery (scar pain, post-surgery pain)Trauma or accident Neuropathic pain is also a common complication of other diseases, including nerve damage after shingles or herpes zoster infection (postherpetic neuralgia or PHN), nerve damage after HIV infectio…

Happy Winter Season!

                  Happy Winter Season!