Tuesday, August 30, 2011

LAW BILL & PANHEMATIN

This request is of ultimate importance. I will explain everything better but in essence , congress has put forth a bill that could make certain drugs for rare diseases no longer available . Please call me if you are taking panhematin. I will be in the APF office tomorrow. 1 866 APF 3635.

HELLO EVERYONE: ATTENTION PLEASE: IF YOU HAVE TAKEN PANHEMATIN AND HAVE BEEN DIAGNOSED THE APF NEEDS YOUR HELP URGENTLY:

We need you to tell us straight forward in a letter format ASAP if you have received Panhematin how many times you have received it, what setting hospital inpatient outpatient and would you say that it has helped save your life. Please think about your letters to inspire us to help gvt officials see the need for Panhematin and why it is so precious to you and how it has saved your life. Please include your name address and phone numbers, city and state, PLEASE BE DIRECT. Look at the announcement on the www.porphyriafoundation and send them to your Congressmen/woman The APF needs our help! They help us lets help them!

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