Skip to main content

Wristbands for Sale

We Have Wristbands for Sale to Support
Dr. Continuing Education Program for the
American Porphyria Foundation

Your Choice is Light Blue OR Purple and they read: www.Porphyria Foundation.com.
Please take a moment and ask your friends and family to help donate to this very special cause.  I will be taking orders by Email they will be 2/4.50$ US residents.  They are all 100% Silicone.  I where mine all the time it shows how important the APF is to me, it serves as a reminder to me that I have a rare disease and also helps to show the Medical Staff that I have this disease to.
But let’s be supportive together to raise awareness for PORPHYRIA

Please email me @ AmylChapman1992@gmail.com
Please include the following:  Name Full Address City State Zip Phone
Quantity of Each of the Blue or Purple.  You can send your deposit directly to Firstgiving.com and click under American Porphyria Foundation and click under Amy Chapman~Wristbands
You will receive a receipt that you have made a donation to the APF

Thank you for your support!

Comments

Popular posts from this blog

Amazing patient advocacy....and needed media for this issue. Thank you Terri Witter!

Q & A WITH PORPHYRIA EXPERT, DR. BRUCE WANG, UCSF

Q & A WITH PORPHYRIA EXPERT, DR. BRUCE WANG, UCSF 
The APF asked our Facebook friends for their top questions they would ask a porphyria expert.
 The following questions were submitted to Dr. Wang for his responses ... Q. Does EPP give us bad teeth? Also, do people with EPP get stomach pains or is that with the other porphyias? A. The porphyrin that accumulates in EPP patients is protoporphyrin IX, which does not cause discoloration to teeth or abdominal pain.
 The type of porphyria that leads to discolored teeth is Congenital Erythropoietic Protoporphyria. The porphyrias that lead to episodic abdominal pain attacks are the acute hepatic porphyrias. Q. I have EPP and I have a severe reaction on my hands and lips. Do I seek urgent care? Also, what can you even do when you burn your lips? A. The acute reactions to sunlight in EPP can be very severe and, unfortunately, there are not many effective options to treat the symptoms. Nonsteroidal anti-inflammatory drugs (NSAIDS such as ibup…