Skip to main content

SSA to Expand Compassionate Allowances List in 2012

Social Security Administration (SSA) has notified the APF that it hopes to expand its Compassionate Allowances list in 2012. 

As most of you know, Compassionate Allowances are diagnoses so severely disabling that affected individuals, almost always, ultimately are approved for Social Security disability assistance, when they apply. However, the approval process may take a long time, particularly with rare diseases. For that reason, Social Security Commissioner, Michael Astrue, worked with his staff to create the Compassionate Allowances program early in his tenure as commissioner. 

Having a disease that is on the Compassionate Allowances list doesn't guarantee that a patient will be given approval for disability assistance. However, it does guarantee a timely review of his/her application for assistance.

To give SSA time to conduct a thorough review of all suggested diagnoses, the APF will be submitting its suggestions to SSA immediately. We must have information by Tuesday, December 13. The requirements are very specific.

SSA's definition of disability is as follows:

Adults: You must be unable to do any substantial work because of your medical condition(s); and your medical condition(s) must have lasted, or be expected to last, at least 1 year, or be expected to result in your death.

Children: The child must have a physical or mental condition(s) that very seriously limits his or her activities; and the condition(s) must have lasted, or be expected to last, at least 1 year or result in death.

Please contact the APF or email Desiree Lyon at

lyonapf@aol.com

Your input is very important!

Comments

Popular posts from this blog

WHAT IS NEUROPATHIC PAIN?

What could it be?
Nerve Pain WHAT IS NEUROPATHIC PAIN? Neuropathic or nerve pain (NP) is a long-term or chronic pain disease that results from nerve damage. It can be caused by different diseases or conditions. Worldwide nerve pain affects as many as 26 million people. Neuropathic or nerve pain may affect larger areas of the body or it can be restricted to a smaller area, in this case it is called localized neuropathic pain (LNP). WHAT CAUSES NEUROPATHIC PAIN? Neuropathic or nerve pain may occur in the absence of an obvious visible cause (e.g. an accident, an injury, a chemical burn). There are several external situations that can directly damage nerves and lead to neuropathic pain, such as: Amputation of a limb (phantom pain, stump pain)Surgery (scar pain, post-surgery pain)Trauma or accident Neuropathic pain is also a common complication of other diseases, including nerve damage after shingles or herpes zoster infection (postherpetic neuralgia or PHN), nerve damage after HIV infectio…

GLOBAL PORPHYRIA ALLIANCE

GLOBAL PORPHYRIA ALLIANCE The APF is proud to support our members that live across the globe. Many countries around the world have developed organizations to support their local communities. We hope that enjoy the same opportunity to communicate with one another, develop friendships, and learn about porphyria. Here are links to patient advocacy groups worldwide that offer support to individuals impacted by porphyria. Argentina: Centro de investigaciones sobre porfirinas y porfirias | More informationAustralia: Porphyria Association, Inc. | More informationBrazil: Associação Brasileira de Porfiria | More informationCanada: Canadian Association for Porphyria | More informationColombia: Fundación Colombiana Para La Porfiria | More informationDenmark: Porfyriforeningen.dk (Porphyria Association Denmark)Denmark: Porfyrier.dk (Danish Porphyria Support Group)England: British Porphyria AssociationFinland: Finnish Porphyria Support Group France: Association Française des Malades Atteints de Por…

Happy Winter Season!

                  Happy Winter Season!