Skip to main content

"Raising Awareness" What Does this mean to YOU?



"Raising awareness" is a phrase that advocacy groups commonly use when promoting a particular issue, organization, or event. Akin to consciousness raising, raising awareness refers to alerting the general public that a certain issue exists and should be approached the way the group desires. Common subjects include certain diseases (e.g. breast cancerAIDS), conflicts (e.g. the Darfur genocideglobal warming), movements (e.g. GreenpeacePETAEarth Hour), andpolitical parties or politicians.
The term awareness raising is also used in the Yogyakarta Principles against discriminatory attitudes[1] and LGBT stereotypes, as well as the Convention on the Rights of Persons with Disabilities to combat stereotypesprejudices, and harmful practices toward people with disabilities.[2]
Since informing the populace of a public concern is often regarded as the first step to changing how the institutions handle it, raising awareness is often the first activity any advocacy group engages in.  
With Porphyria we all have different forms, strengths and abilities so tell me what are you doing today to raise Awareness for Porphyria?  Read about it, talk about it, donate time, energy, money.  Hold a conference, inform your community, local news and TV.  Walk for a cause! Run the race if you can, you make it known to all we are all going to win if we just try.  Have a great week everyone!

Comments

Popular posts from this blog

GLOBAL PORPHYRIA ALLIANCE

GLOBAL PORPHYRIA ALLIANCE The APF is proud to support our members that live across the globe. Many countries around the world have developed organizations to support their local communities. We hope that enjoy the same opportunity to communicate with one another, develop friendships, and learn about porphyria. Here are links to patient advocacy groups worldwide that offer support to individuals impacted by porphyria. Argentina: Centro de investigaciones sobre porfirinas y porfirias | More informationAustralia: Porphyria Association, Inc. | More informationBrazil: Associação Brasileira de Porfiria | More informationCanada: Canadian Association for Porphyria | More informationColombia: Fundación Colombiana Para La Porfiria | More informationDenmark: Porfyriforeningen.dk (Porphyria Association Denmark)Denmark: Porfyrier.dk (Danish Porphyria Support Group)England: British Porphyria AssociationFinland: Finnish Porphyria Support Group France: Association Française des Malades Atteints de Por…

WHAT IS NEUROPATHIC PAIN?

What could it be?
Nerve Pain WHAT IS NEUROPATHIC PAIN? Neuropathic or nerve pain (NP) is a long-term or chronic pain disease that results from nerve damage. It can be caused by different diseases or conditions. Worldwide nerve pain affects as many as 26 million people. Neuropathic or nerve pain may affect larger areas of the body or it can be restricted to a smaller area, in this case it is called localized neuropathic pain (LNP). WHAT CAUSES NEUROPATHIC PAIN? Neuropathic or nerve pain may occur in the absence of an obvious visible cause (e.g. an accident, an injury, a chemical burn). There are several external situations that can directly damage nerves and lead to neuropathic pain, such as: Amputation of a limb (phantom pain, stump pain)Surgery (scar pain, post-surgery pain)Trauma or accident Neuropathic pain is also a common complication of other diseases, including nerve damage after shingles or herpes zoster infection (postherpetic neuralgia or PHN), nerve damage after HIV infectio…

Happy Winter Season!

                  Happy Winter Season!