Do you have this for your Doctors?
The APF promotes comprehensive health care necessary to
manage life with porphyria. We encourage members to call
the office and request a free
Acute Porphyria Physician
for your doctor. Treating physicians can also
get information about consulting a Porphyria specialist on diagnosis
and patient care.
Acute Porphyria Physician Education Kit contents:Diagnosis and Management of the Acute Porphyrias,”
Annals Int Med, March 2005);
on all of the porphyrias (written by porphyria
experts);Detailed information on biochemical and genetic testing
Detailed information on treatment of acute porphyria
(hemin for injection), and preparing
hemin with albumin.
The APF also offers:In acute porphyria Drug Safety Database;
Two Continuing Medical Education courses on Porphyria
(online, free of charge to practicing physicians);A PowerPoint presentation, suitable for detailed presentation
to students and hospital staff;Porphyria Live
(30-minute educational DVD focusing on
PCT, AIP and EPP, features patient stories and extended specialist
interviews).For more information, call 713-266-9617 or 866-APF-3635