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Important upcoming Events Get involved!


Important upcoming Events
Get involved!

A Charity Paintball Game to benefit the 
American Porphyria Foundation
November 4, 2012 9:00 am. @ Paintball Explosion Park
601 Dundee av., East Dundee, Illinois 60118

Boston Patient Meeting with Dr. Peter V. Tishler & 
Dr. Herbert Bonkovsky
You are invited to an American Porphyria Foundation Patient Meeting with Renowned Porphyria Experts Dr. Peter V. Tishler & Dr. Herbert Bonkovsky
November 12, 2012, 5:30-8:00 PM EST @Brigham Shapiro Building Shapiro Board Room (First Floor), 70 Francis Street, Boston, MA 02115

APF Exhibit at the American Society of Hematology. 
Volunteers needed.
The American Porphyria Foundation will host an Exhibit Booth at the Annual American Society of Hematology Convention at the Georgia World Congress Center, Atlanta, GA, December 8-10, 2012.
We are in need of volunteers to help man the Exhibit booth (dates and times are listed below), to educate eight thousand physicians who will attend the meeting. This is a wonderful opportunity for APF members in the Atlanta area to educate physicians about porphyria by distributing pertinent medical information and share your own experience with the disease. Together we can enhance awareness and education of the porphyrias.   If you would like to be a part of this exciting opportunity, please e- mail Yvette atporphyrus@aol.com or call (713) 266-9616.
For Exhibit dates and times and contact information visithttp://www.porphyriafoundation.com/events/2012-ASH-APF-Exhibit

"Remember......Research is the key to your cure!"

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 The following questions were submitted to Dr. Wang for his responses ... Q. Does EPP give us bad teeth? Also, do people with EPP get stomach pains or is that with the other porphyias? A. The porphyrin that accumulates in EPP patients is protoporphyrin IX, which does not cause discoloration to teeth or abdominal pain.
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