What is Rare Connect? Once you sign up it's free and you become a member. You are Connecting with Patients of Rare disease Globally! There is Information from many of the Porphyria Centers worldwide, we ask questions, we talk, we read and join in excellent conversations! So if you see any familiar faces say "HI" and become friends and if you or know someone with another disease join that group to. We are excited for all of you to join in this process. All groups are monitored and all have good guidelines to follow and it's so simple to use. If you have any problems or signing up please contact AmyLChapman1992@gmail.com and she will be happy to assist you.
"Research is the Key to Your Cure"