Sunday, March 24, 2013

Safe & Unsafe Drugs

Safe/Unsafe Drugs Dr. Peter V. Tishler, who is a porphyria expert at Harvard/ Brigham and Women’s
Hospital in Boston, has been instrumental in overseeing and updating the APF Safe/Unsafe Drug
List for acute porphyria. Dr. Tishler is kindly updating the list again and wants your input. Therefore, if
you have been negatively affected by a specific drug, please contact the APF. We will then put you directly
in contact with Dr. Tishler to discuss your experience. When you report a drug, please have on
hand, the name of the drug, the dose, and a synopsis of what happened to you when you took the
drug. As you know, the Safe/Unsafe Drug List is extremely important for people with acute porphyrias,
so your input is very important. It is often a lifesaving tool for the patients and their doctors.
Dr. Tishler is a clinician/researcher in human genetics, including polycystic kidney disease, chronic obstructive
pulmonary disease, Fabry’s disease, and the porphyrias. We are fortunate to have porphyria specialists, like
Dr. Tishler, to devote himself not only to our present health needs but to help assure a healthier future for each of us.

Remember....Research is the Key to your cure! 

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