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National Porphyria Awareness Week

National Porphyria Awareness Week

April 14-21, 2013

This is your opportunity to enhance Porphyria awareness in your community.  Although the APF promotes porphyria awareness every day of the year, Porphyria Awareness Week presents us all with the opportunity to simultaneously flood the media, medical facilities, friends and family with information to help others understand more about Porphyria.  The week can also be our reminder to promote some awareness activity throughout the year. 

We are happy to report that many people have been diagnosed through your awareness efforts.  Everyone has a story that can benefit others.  If you would like materials to help you in your awareness project, please contact the APF.  

Together we can improve porphyria diagnosis and treatment.

If you need materials or have any questions please contact the APF @ 1.866.APF.3635.

Share your campaign with us and others on the APF fb page.
Join us on fb-click here 

"Remember....Research is the key to your cure!"


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GLOBAL PORPHYRIA ALLIANCE The APF is proud to support our members that live across the globe. Many countries around the world have developed organizations to support their local communities. We hope that enjoy the same opportunity to communicate with one another, develop friendships, and learn about porphyria. Here are links to patient advocacy groups worldwide that offer support to individuals impacted by porphyria. Argentina: Centro de investigaciones sobre porfirinas y porfirias | More informationAustralia: Porphyria Association, Inc. | More informationBrazil: Associação Brasileira de Porfiria | More informationCanada: Canadian Association for Porphyria | More informationColombia: Fundación Colombiana Para La Porfiria | More informationDenmark: (Porphyria Association Denmark)Denmark: (Danish Porphyria Support Group)England: British Porphyria AssociationFinland: Finnish Porphyria Support Group France: Association Française des Malades Atteints de Por…