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Showing posts from December, 2014

Take Steps to Improve Your Health

Take Steps to Improve Your Health
DO YOU remember Ram, mentioned in the first article of this series? Like many others around the world, Ram was unaware of how important proper eating and other daily practices are to health. He relates: “The Awake! article ‘Nutritious Foods Within Your Reach’ (May 8, 2002) helped me to understand why we should be aware of nutrition.” Ram explains: “As a family, we tried to apply what we learned from the article. After a while, we found that our immune systems were strengthened. Before we began paying attention to our nutrition, we used to catch colds quite often, but now we seldom do. We also learned about economical and easy ways to obtain clean drinking water, thanks to theAwake! article ‘Six Ways to Safeguard Your Health.’”—September 22, 2003. “Another Awake! article helped me to improve the health of my family. It was entitled ‘Soap—A “Do-It-Yourself Vaccine,”’ in the November 22, 2003, issue. We tried the suggestions in this article as soon as w…

Key 5—Motivate Yourself and Your Family

Key 5—Motivate Yourself and Your Family
“Everyone shrewd will act with knowledge.”  Arming yourself with basic health information can equip and help motivate you to make needed adjustments for better personal and family health. Keep learning. Public and private institutions in many lands provide educational programs and literature on a wide range of health topics. Take advantage of them, and educate yourself about basic ways to improve your health and to avoid endangering it. Keep an open mind, and be willing to make simple adjustments. The good habits you learn and put into practice may well benefit your children and their children after them. When parents set a good example in regard to healthful nutrition, cleanliness, sleep habits, exercise, and disease prevention, their offspring are likely to benefit.

What more is needed? It takes more than self-interest to establish and maintain a healthful way of life. Eliminating long-standing bad habits can be daunting, and making even simple…

New APF Stuff is here gets yours today before they go! All Pictures included below

New APF Long Sleeve & Short Sleeve APF T-Shirts are here!
• Short Sleeve White/Purple Lettering
• Long Sleeve are Dark Grey w/ Purple Lettering Our hope for the T-shirts is that you all will buy and wear them to help promote and raise questions about Porphyria and to raise funds for the Dr. Packets, pain Management docs, among many other publications we make available at no cost. There are also some copies of Porphyria Live for sale. For information on how to order the T-Shirts and/or the Porphyria Live Video see below. You can order a T-shirt and/or Porphyria Live DVD, Awareness Ribbons & Wristbands by sending an email order to
I must have name, complete address, and phone number. Also include the Quantity of T-shirts and the size for each one. To accept payment: One of two options: 1} I can accept Paypal VISA/MC only I must have full name on the card, account#, exp. date, 3 digit code on back of card CVV-
2}I will accept money orders. You must have name/addre…

Merry Christmas and Happy New Year from the APF!

Merry Christmas and Happy New Year from the APF! We wanted to take this opportunity to wish you all a joyous holiday season. Please, consider volunteering for the research studies currently being conducted. YOU are the KEY to research and RESEARCH is the KEY to your CURE. To become a patient volunteer, please contact me or Natalia Apf on Facebook, or call us: 713-266-9617

"Remember.....Research is the key to your cure!"

Key 4—Protect Your Health

Key 4—Protect Your Health
“Shrewd is the one that has seen the calamity and proceeds to conceal himself.”  Taking simple protective steps can help you avoid much sickness and misery, as well as loss of time and money. Keep yourself clean. “Hand washing is the single most important thing that you can do to help prevent the spread of infection and to stay healthy and well,” reports the U.S. Centers for Disease Control and Prevention. As many as 80 percent of infections are said to be passed on by unclean hands. So wash them often throughout the day. Do so especially before eating, preparing food, or dressing or even touching a wound, and do so after touching an animal, using the toilet, or changing a baby’s diaper. Washing with soap and water is more effective than using alcohol-based hand sanitizers. Children stay healthier when parents train them to wash their hands and to keep them away from their mouth and eyes. Bathing every day and keeping your clothes and bed linens fresh and cle…

Key 3—Keep Yourself Moving

This can be the hard part! Key 3—Keep Yourself Moving “If exercise were a pill, it would be the most widely prescribed medication in the world.” (Emory University School of Medicine) Of all the things we can do for our health, few are more generally helpful than physical exercise. Exert yourself. Leading a physically active life can help us feel happier, think more clearly, have more energy, be more productive and, along with proper diet, control our weight. Exercise need not be painful or extreme to be effective. Regular periods of moderate exercise several times a week can be very beneficial. Jogging, brisk walking, biking, and taking part in active sports—enough both to get your heart beating faster and to cause you to break a sweat—can improve your endurance and help to prevent heart attack and stroke. Combining such aerobic exercise with moderate weight training and calisthenics helps to strengthen your bones, internal muscles, and limbs. These activities also contribute to mainta…

Key 2—Take Care of Basic Body Needs

Key 2—Take Care of Basic Body Needs “No one ever hated his own body: on the contrary, he provides and cares for it.” Taking basic steps to care for yourself can make a world of difference in your health. Get enough rest. “Better is a handful of rest than a double handful of hard work and striving after the wind.” The demands and distractions of modern life have whittled away at the time people spend sleeping. But sleep is essential to good health. Studies show that during sleep our body and brain repair themselves, benefiting memory and mood. Sleep reinforces the immune system and reduces our risk of infection, diabetes, stroke, heart disease, cancer, obesity, depression, and perhaps even Alzheimer’s disease. Rather than artificially bypassing sleepiness—our natural “safety device”—with sweets, caffeine, or other stimulants, we should heed it and simply get some sleep. Most adults need seven to eight hours of sleep every night to look, feel, and perform their best. Young people need mo…

Our New Medical Hero! Tara Cantley

Our New Medical Hero! Tara Cantley is one of the most recent patient volunteers to enroll in the Longitudinal Study, Panhematin Study and the Natural History Study of Acute Liver (Hepatic) Porphyria. The APF flew Tara down to the University of Texas Medical Branch in Galveston, TX to meet with one of the leading experts on porphyria, Dr. Karl Anderson. Tara is excited to be a part of the very important research studies and be able to make a difference and help others. Jessica from the APF was able to go down and visit with Tara while she was admitted to the UTMB hospital. They were able to chat for hours, after that Tara had finished her study requirements for the day. Jessica even had the unique opportunity to meet Dr. Anderson, along with one of Tara's wonderful nurses. Tara and Jessica enjoyed spending time together and it was a great experience for Jessica, who is new to the APF office. Tara understands how important the research studies are for both her and others affected by p…

Key 1—Eat Wisely

Key 1—Eat Wisely “Eat food. Not too much. Mostly plants.” With these few words, author Michael Pollan encapsulates simple, time-tested dietary advice. What does he mean? Eat fresh foods. Concentrate on eating “real” food—whole, fresh foods that people have been enjoying for millenniums—rather than modern processed foods. Commercially prepackaged foods and fast food from chain restaurants usually contain high levels of sugar, salt, and fat, which are associated with heart disease, stroke, cancer, and other serious illnesses. When cooking, try steaming, baking, and broiling instead of frying. Try using more herbs and spices to cut down on salt. Make sure meats are properly cooked, and never eat spoiled food. Do not eat too much. The World Health Organization reports a dangerous worldwide increase in overweight and obese people, often the result of overeating. One study found that in parts of Africa, “there are more children who are overweight than malnourished.” Obese children are at ris…

You Can Improve Your Health

As the family and holiday times approach many are concerned about their health the foods they eat and what simple measures they can take to ensure that they have good Health.  As always please follow up and ask any questions to your Primary Care Doctor, before beginning any changes in diet and daily routine.

You Can Improve Your Health Rustam RUSTAM, who lives in Russia, leads a busy life. In the past, he had some unhealthful habits but came to realize that he was paying a price for them. He stopped smoking and overindulging in alcohol. Still, long days in front of his computer left him feeling lethargic. Although Rustam started work at eight o’clock in the morning, he rarely felt fully awake until ten, and he was often sick. So he made an adjustment to his routine. The result? “In the last seven years, I haven’t taken more than two sick days a year,” he reports. “I feel great—awake and alert—and I enjoy life!” Ram, his wife, and their two small children live in Nepal. Sanitation is l…

Why Should I Help Others?

Why Should I Help Others?
Two secrets many people don’t know Young people who care How can I help others? Two secrets that many people don’t knowSecret #1: When you give, you are likely to get back! People will notice that you are generous. As a result, they’ll probably be generous to you.  “Practice giving, and people will give to you. . . . With the measure that you are measuring out, they will measure out to you in return.” “The way you treat others is the way you will be treated.”— Secret #2: When you help others, you help yourself! Doing good things for others boosts your self-respect and makes you feel the satisfaction that comes from giving. The Bible puts it this way: “There is more happiness in giving than there is in receiving.”— “When you spread a feast, invite poor people, crippled, lame, blind; and you will be happy, because they have nothing with which to repay you.”— Young people who care Young people who care about others are everywhere! Consider some examples.

“Sometimes w…

Patient meeting and the ASH convention

Patient meeting and the ASH convention The APF just came back from the 56th ASH Annual Meeting, which was held in San Francisco, CA. More than 20,000 hematologists and health professionals in the field were in attendance. The APF educated physicians, professionals and everyone interested. Also, in a few short months, the APF hosted four patient education meetings. Our last meeting happened last week in conjunction with the ASH convention. The patients had a unique opportunity to meet and hear the presentations given by the porphyria experts: Dr. Bissell, Dr. Phillips and our Protect the Future trainee, Dr. Bruce Wang. We all thank the experts for the donating their time and giving wonderful presentations! We also thank everyone: patients, their family members and friends who attended. We are looking forward to seeing you on our upcoming meetings!
HealthWell Foundation We would like to remind you about the HealthWell Foundation, that assists patients living with chronic and life-altering il…