Lifestyle and home remediesBy Mayo Clinic Staff
If you have porphyria:
- Learn what could trigger symptoms. Talk to your doctor about the type of porphyria you have and become familiar with possible symptom triggers and ways to avoid them.
- Inform your health care providers. Tell all your health care providers that you have porphyria. This is particularly important because sometimes treatments, medications or surgery can trigger porphyria symptoms.
- Wear a medical alert bracelet or necklace. Have information about your condition inscribed on a medical alert bracelet or necklace, and always wear it.
PreventionBy Mayo Clinic Staff
Although there's no way to prevent porphyria, if you have the disease, these steps may help prevent symptoms:
- Avoid medications known to trigger acute attacks. Ask your doctor for a list of safe and unsafe drugs.
- Don't use alcohol or illegal drugs.
- Avoid fasting and dieting that involves severe calorie restriction.
- Don't smoke.
- Minimize sun exposure. When you're outdoors, wear protective clothing and use a broad-spectrum sunscreen with a high sun protection factor (SPF).
- Treat infections and other illnesses promptly.
- Take steps to reduce emotional stress.
Because porphyria is an inherited disorder, your siblings and other family members may want to consider genetic testing to determine if they have the disease.
"Remember....Research is the key to your cure!"