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Patient Meet in Philadelphia

Over the weekend, Ariel Lager hosted a successful patient meeting in Philadelphia.
There was a great turnout and Dr. Manish Thapar gave a wonderful presentation about the porphyrias before welcoming questions from the group. Alnylam Pharmaceuticals also made a great presentation about their current research studies.
Jessica from the APF was able to attend the meeting and was very happy to meet so many people!
**There will be another Patient Meeting in Indianapolis soon! Stay tuned for more information!**
Please let the APF know if you'd like to host a meeting in your area!
 If you would like to receive the Apf E-News that contains information about Events, Research News, Research opportunities, and much much more please join the APF: http://www.porphyriafoundation.com/content/join-apf
"Remember....Research is the key to your cure!"
American Porphyria Foundation added 3 new photos.
Published by Rob Saupe'6 mins
Over the weekend, Ariel Lager hosted a successful patient meeting in Philadelphia.
There was a great turnout and Dr. Manish Thapar gave a wonderful presentation about the porphyrias before welcoming questions from the group. Alnylam Pharmaceuticals also made a great presentation about their current research studies.
Jessica from the APF was able to attend the meeting and was very happy to meet so many people!
**There will be another Patient Meeting in Indianapolis soon! Stay tuned for more information!**
Please let the APF know if you'd like to host a meeting in your area!
 If you would like to receive the Apf E-News that contains information about Events, Research News, Research opportunities, and much much more please join the APF: http://www.porphyriafoundation.com/content/join-apf
"Remember....Research is the key to your cure!"

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 The following questions were submitted to Dr. Wang for his responses ... Q. Does EPP give us bad teeth? Also, do people with EPP get stomach pains or is that with the other porphyias? A. The porphyrin that accumulates in EPP patients is protoporphyrin IX, which does not cause discoloration to teeth or abdominal pain.
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