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National Porphyria Awareness Week: April 22 - 29, 2017


National Porphyria Awareness Week: April 22 - 29, 2017

Rita Ladner set up a table at her local pharmacy (Boone's Pharmacy) to pass out porphyria brochures and porphyria fact sheets.  She also educated those with questions about this rare disease.  She had one lady come up to her who had a friend recently pass away with porphyria.  She had not heard of it again until she had spoken to Rita.  She sends her inspiration for YOU to do MORE!  Way to go, Rita!



Think about what you can do to heighten awareness!

National Porphyria Awareness Week provides each of YOU with the opportunity to enhance porphyria awareness in your local and medical communities. 

The APF can help you accomplish this goal by providing materials:
  • Porphyria Brochures
  • A Porphyria Live DVD
  • Fact sheets
  • A PowerPoint Presentation
  • Information for Grand Rounds
  • Ideas to set up Medical Seminars
  • Ideas to exhibit at a Health Fair
  • Information to gain press
  • Doctor packets sent to your doctors
  • Press Releases

Contact the APF today 1.866.APF.3635!

"Remember....Research is the key to your cure!"

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