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APF Meeting & Cook Family Award


The American Porphyria Foundation will be hosting a Patient Education meeting for Erythropoietic Protoporphyria on Friday, July 21, 2017 in Craryville, NY at Camp Sundown. See the invite below.
  Invite

Call the APF TODAY to RSVP on 1.866.APF.3635! We are looking forward to seeing you there.


CONGRATULATIONS TO THE COOK FAMILY!

The American Porphyria Foundation presents the President's Award each year to those who have assisted the APF greatly in achieving our mission to fund research, provide education, and create awareness. The awardee goes above and beyond to support their communities including patients, caregivers, families and physicians.
The President's Award 2017 has been given to the Cook Family for their outstanding service to the American Porphyria Foundation. Congratulations and thank you for all that you do. See the photo below of Caul and Cason Cook. The Cook Family: Lee Ann, Chris, Caul and Cason.
Cason and Caul 

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 The following questions were submitted to Dr. Wang for his responses ... Q. Does EPP give us bad teeth? Also, do people with EPP get stomach pains or is that with the other porphyias? A. The porphyrin that accumulates in EPP patients is protoporphyrin IX, which does not cause discoloration to teeth or abdominal pain.
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