Friday, September 22, 2017
IMPORTANT EPP MEMBERS
IMPORTANT EPP MEMBERS~
“We need your help in our campaign to approve Scenesse”
If you or someone you know is in the EPP MEDICAL
community (Doctor, RN, or Other Medical Professional) and
HAS EPP to please contact Kristen APF.
Kristen@porphyriafoundation.org or call her 301.461.9889
JUDY SNYDER TYPE OF PORPHYRIA Acute Intermittent Porphyria (AIP) It was early April 1997, and I was truly enjoying my job as the...
Emergency Room Guidelines for Acute Porphyrias These Emergency Room Guidelines (download PDF) cover essential information for the emer...
What could it be? Nerve Pain WHAT IS NEUROPATHIC PAIN? Neuropathic or nerve pain (NP) is a long-term or chronic pain dise...