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The American Porphyria Foundation will provide updates and information here, as well as on the main site - http://porphyriafoundation.org
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Event Brite- FDA Scientific Workshop for Erythropoietic Protoporphyria (EPP) is now available for review
We are thankful for your participation and grateful to the patients, caregivers, experts and others who shared their perspectives at the workshop. For more information on this workshop, please visit the workshop website here: https://www.fda.gov/drugs/newsevents/ucm501389.htm.
What could it be? Nerve Pain
WHAT IS NEUROPATHIC PAIN?
Neuropathic or nerve pain (NP) is a long-term or chronic pain disease that results from nerve damage. It can be caused by different diseases or conditions. Worldwide nerve pain affects as many as 26 million people. Neuropathic or nerve pain may affect larger areas of the body or it can be restricted to a smaller area, in this case it is called localized neuropathic pain (LNP).
WHAT CAUSES NEUROPATHIC PAIN?
Neuropathic or nerve pain may occur in the absence of an obvious visible cause (e.g. an accident, an injury, a chemical burn). There are several external situations that can directly damage nerves and lead to neuropathic pain, such as: Amputation of a limb (phantom pain, stump pain)Surgery (scar pain, post-surgery pain)Trauma or accident
Neuropathic pain is also a common complication of other diseases, including nerve damage after shingles or herpes zoster infection (postherpetic neuralgia or PHN), nerve damage after HIV infectio…