Skip to main content

6 Things You Need to Know About Invisible Illnesses Part 1 of 6

6 Things You Need to Know About Invisible Illnesses

Imagine being so frozen with fear and dread that you refuse to get out of your car.
Even though you know you’re sick, you know as soon as you step out that people will see your lack of a wheelchair or crutches and do a double take of the handicapped spot you’ve parked in.
The sad truth is that unless your disability is blatantly physically obvious, able-bodied people assume you’re just like them.
Yet the truth is that about 96% of us disabled people have what are called an invisible illness. And because they’re invisible, people assume we’re faking all the time. And the scariest thing is that many painful chronic illnesses go without acknowledgement or recognition from society, even within disability circles.
An invisible illness can be mental, physical, or both. There usually aren’t too many outward signs of said illness, which is why the phrase “but you don’t look sick” is both widespread and completely missing the point.
Take me, for instance.
I look like a rather healthy and young person. And yet, I have maybe ten invisible illnesses. Starting with my very first menstrual cycle, I spent two weeks out of every month doubled over in pain, wanting to kill myself, being told it was all in my head.
I grew older and eventually the intense pain spread to the rest of my body. And as the sexual and emotional abuse worsened, so did my mental health. Eventually I became a bit of a shut in.
Then I began receiving worse and worse diagnosis of chronic – invisible – illnesses.
The most debilitating ones are endometriosis, Polycystic Ovarian Syndrome, Premenstrual Dysphoric Disorder, and fibromyalgia. I don’t suffer as much from my Post-Traumatic Stress Disorder anymore, but I do still deal with secondary depression and anxiety.
Most of these are things people have never heard of, or ones that people didn’t realize could apply to people like me.

Most people lack the information or experience to empathize with our struggles. So here are six experiences you may never have realized people with chronic illness have to deal with.

Comments

Popular posts from this blog

GLOBAL PORPHYRIA ALLIANCE

GLOBAL PORPHYRIA ALLIANCE The APF is proud to support our members that live across the globe. Many countries around the world have developed organizations to support their local communities. We hope that enjoy the same opportunity to communicate with one another, develop friendships, and learn about porphyria. Here are links to patient advocacy groups worldwide that offer support to individuals impacted by porphyria. Argentina: Centro de investigaciones sobre porfirinas y porfirias | More informationAustralia: Porphyria Association, Inc. | More informationBrazil: Associação Brasileira de Porfiria | More informationCanada: Canadian Association for Porphyria | More informationColombia: Fundación Colombiana Para La Porfiria | More informationDenmark: Porfyriforeningen.dk (Porphyria Association Denmark)Denmark: Porfyrier.dk (Danish Porphyria Support Group)England: British Porphyria AssociationFinland: Finnish Porphyria Support Group France: Association Française des Malades Atteints de Por…

WHAT IS NEUROPATHIC PAIN?

What could it be?
Nerve Pain WHAT IS NEUROPATHIC PAIN? Neuropathic or nerve pain (NP) is a long-term or chronic pain disease that results from nerve damage. It can be caused by different diseases or conditions. Worldwide nerve pain affects as many as 26 million people. Neuropathic or nerve pain may affect larger areas of the body or it can be restricted to a smaller area, in this case it is called localized neuropathic pain (LNP). WHAT CAUSES NEUROPATHIC PAIN? Neuropathic or nerve pain may occur in the absence of an obvious visible cause (e.g. an accident, an injury, a chemical burn). There are several external situations that can directly damage nerves and lead to neuropathic pain, such as: Amputation of a limb (phantom pain, stump pain)Surgery (scar pain, post-surgery pain)Trauma or accident Neuropathic pain is also a common complication of other diseases, including nerve damage after shingles or herpes zoster infection (postherpetic neuralgia or PHN), nerve damage after HIV infectio…

Happy Winter Season!

                  Happy Winter Season!