Skip to main content

Part 5. The Absence of Invisible Illness in Accessibility Talks is Problematic

5. The Absence of Invisible Illness in Accessibility Talks is Problematic

Speaking of ineffective, even those who are active disability advocates fail to take into account the intersections of disability with other identities and realities.
Even certain types of disability are pushed to the margins. The most common invisible illnesses spoken of are mental disorders like schizophrenia and bipolar disorder, along with the neurodivergent experiences of autistic people.

 But this means that anyone without a popularized chronic illness is marginalized within both media and disability movements.
There are plenty of disabled people saying they wanted to be treated like they’re normal, but for those of us with chronic pain, that’s the opposite of a solution. Treating us like “normal” people, or even other disabled people, will absolutely make things worse.
Recently, I attended a disability festival. It was the most disability-inclusive environment I’d ever been in, with sections for the deaf, those with low vision, those in wheelchairs, and more. Yet even they failed to take chronic pain sufferers into account: the chairs were rigid and hard. I nearly lay down on the floor to relieve the pain those chairs caused.
Until you can experience the pain of sitting, the pain of a breeze, you have no idea what chronic pain can do to a body.


Popular posts from this blog

Amazing patient advocacy....and needed media for this issue. Thank you Terri Witter!


What could it be?
Nerve Pain WHAT IS NEUROPATHIC PAIN? Neuropathic or nerve pain (NP) is a long-term or chronic pain disease that results from nerve damage. It can be caused by different diseases or conditions. Worldwide nerve pain affects as many as 26 million people. Neuropathic or nerve pain may affect larger areas of the body or it can be restricted to a smaller area, in this case it is called localized neuropathic pain (LNP). WHAT CAUSES NEUROPATHIC PAIN? Neuropathic or nerve pain may occur in the absence of an obvious visible cause (e.g. an accident, an injury, a chemical burn). There are several external situations that can directly damage nerves and lead to neuropathic pain, such as: Amputation of a limb (phantom pain, stump pain)Surgery (scar pain, post-surgery pain)Trauma or accident Neuropathic pain is also a common complication of other diseases, including nerve damage after shingles or herpes zoster infection (postherpetic neuralgia or PHN), nerve damage after HIV infectio…


GLOBAL PORPHYRIA ALLIANCE The APF is proud to support our members that live across the globe. Many countries around the world have developed organizations to support their local communities. We hope that enjoy the same opportunity to communicate with one another, develop friendships, and learn about porphyria. Here are links to patient advocacy groups worldwide that offer support to individuals impacted by porphyria. Argentina: Centro de investigaciones sobre porfirinas y porfirias | More informationAustralia: Porphyria Association, Inc. | More informationBrazil: Associação Brasileira de Porfiria | More informationCanada: Canadian Association for Porphyria | More informationColombia: Fundación Colombiana Para La Porfiria | More informationDenmark: (Porphyria Association Denmark)Denmark: (Danish Porphyria Support Group)England: British Porphyria AssociationFinland: Finnish Porphyria Support Group France: Association Française des Malades Atteints de Por…