Monday, December 18, 2017

Light The Moment 2018

APF_FBCover_03 email header

Shadow Jumpers 
A new program supported by the American Porphyria Foundation
for children living with Erythropoietic Protoporphyria (EPP)

 APF Stand Alone Logo Email

We invite you to visit
Inside you will find tips and tricks on living with EPP, learn from fellow EPPers, read EPP Kid's stories, see new apparel and a very special opportunity with LIGHT THE MOMENT 2018!
We even have a mascot!
Shadow Jumpers Mascot
We welcome all new tips, stories and ideas. Please send to:

For comprehensive information on Erythropoietic Protoporhyria (EPP), please visit the
 American Porphyria Foundation website:

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