Skip to main content

NEW! 2017 APF Winter Merchandise

APF Merchandise for Sale!
Our hope is that you all will buy and wear APF merchandise to help promote and raise awareness about Porphyria.  Please note that all orders will go through APF employee Amy Chapman.
****We DO NOT accept orders through FB****
 Please submit your order and payment to or call 1-616-213-0300 directly and leave a detailed message.
Please send an email and include the following:  Full Name, complete mailing address, phone number.
Order: Please send your items that you would like to order by quantity & size for each T-shirt.  For privacy purposes, please send in the email either the Visa/MC Number, Expiry Date, & CVV code on the back of your card.  If you prefer I can contact you by phone.  NO CC info is EVER kept on file!
**International orders may be priced higher allow 48 hours**
All orders include shipping prices for USPS only 
  • Long Sleeve Shirts~ are 6 ounces each 100% Cotton.  Colors are Medium Gray or Purple
Price Each- S, M, L 20.00$ Each ** X-LG. 2XL, 3XL are 3.00 each more**

  • Long Sleeve 100% Cotton Thick Zip Up Hoodie  Colors are Medium Gray or Royal Purple.
Price Each- S, M, L 45.00$ Each ** X-LG. 2XL, 3XL are 5.00 each more**

  • Long Sleeve 100% Cotton Pull Over Hoodie  Colors are Medium Grey/Gray or Royal Purple
Price Each- S, M, L 40.00$ Each ** X-LG. 2XL, 3XL are 5.00 each more**
  • Greg/Gray Soft Baseball cloth hats adjustable hat backside- 22.00$ Each  
  • (Fits Adults Sizes)
  • Wristbands- 2/6.00 or 3.00$ each Colors are Blue or Purple
  • Porphyria Car or Fridge Magnet 8.00$ each

Get yours today for a loved One!


Popular posts from this blog

Amazing patient advocacy....and needed media for this issue. Thank you Terri Witter!


What could it be?
Nerve Pain WHAT IS NEUROPATHIC PAIN? Neuropathic or nerve pain (NP) is a long-term or chronic pain disease that results from nerve damage. It can be caused by different diseases or conditions. Worldwide nerve pain affects as many as 26 million people. Neuropathic or nerve pain may affect larger areas of the body or it can be restricted to a smaller area, in this case it is called localized neuropathic pain (LNP). WHAT CAUSES NEUROPATHIC PAIN? Neuropathic or nerve pain may occur in the absence of an obvious visible cause (e.g. an accident, an injury, a chemical burn). There are several external situations that can directly damage nerves and lead to neuropathic pain, such as: Amputation of a limb (phantom pain, stump pain)Surgery (scar pain, post-surgery pain)Trauma or accident Neuropathic pain is also a common complication of other diseases, including nerve damage after shingles or herpes zoster infection (postherpetic neuralgia or PHN), nerve damage after HIV infectio…


GLOBAL PORPHYRIA ALLIANCE The APF is proud to support our members that live across the globe. Many countries around the world have developed organizations to support their local communities. We hope that enjoy the same opportunity to communicate with one another, develop friendships, and learn about porphyria. Here are links to patient advocacy groups worldwide that offer support to individuals impacted by porphyria. Argentina: Centro de investigaciones sobre porfirinas y porfirias | More informationAustralia: Porphyria Association, Inc. | More informationBrazil: Associação Brasileira de Porfiria | More informationCanada: Canadian Association for Porphyria | More informationColombia: Fundación Colombiana Para La Porfiria | More informationDenmark: (Porphyria Association Denmark)Denmark: (Danish Porphyria Support Group)England: British Porphyria AssociationFinland: Finnish Porphyria Support Group France: Association Française des Malades Atteints de Por…