Monday, December 11, 2017

**UPDATED** Patient Day January 13, 2017 Orlando FL PLEASE READ!


Saturday January 13, 2018


Patient Day
10:00 am
Welcome D. Lyon-Howe, American Porphyria Foundation
10:05 am
American Porphyria Foundation Overview
Session 1- Heme Biosynthesis & the Erythropoietic Porphyrias
Co-Chairs: E. Minder, MD & S. Keel, MD
10:15 am
Heme Biosynthesis and the Porphyrias 101J.D. Phillips, PhD
10:45 am
Genetics 101H. Naik, MS, CGC
11:00 am
Erythropoietic Porphyrias Overview– M. Balwani, MD, MS
11:30 am
EPP Research– J. Marcero
11:45 am
Effective & Emerging Therapies for the Treatment of Erythropoietic Porphyrias– E. Minder, MD, MS
12:15 pm
Q & A moderated by Co-Chairs
12:45 pm
Lunch
Session 2- the Acute Hepatic Porphyrias
Co-Chairs: D.M. Bissell, MD & C. Levy, MD
1:45 pm
Diagnosis of the Porphyrias– M. Badminton, MBChB, PhD
2:15 pm
Acute Hepatic Porphyrias Overview– D.M. Bissell, MD
2:45 pm
Caregivers and Support– Sandra Boone
2:45 pm
Current & Emerging Treatments– B. Wang, MD
3:30 pm
Research Overview and Patient PerspectiveTBD and Sharon Dill, Patient Representative
3:45 pm
Q & A moderated by Co-Chairs


4:30 pm
Closing remarksAmerican Porphyria Foundation

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