Thursday, March 29, 2018

Spread the WORD! Porphyria Awareness Week will be held on April 21-28, 2018


Porphyria Awareness Week will be held on April 21-28, 2018. We strive to dedicate this week to promote this group of rare diseases, reduce the stigma associated with porphyria through physician education, and provide support for those affected.

National Porphyria Awareness Week is the time for you to bring porphyria awareness to your local communities. We, at the American Porphyria Foundation, encourage You to help raise awareness and provide accurate information about porphyria where you live. The APF will help you accomplish your own activity by providing:

• Porphyria Brochures
• Porphyria Fact Sheets
• PorphyriaLive DVDs
• Information to gain media attention
• PowerPoint presentations,
• Porphyria Awareness week Graphics for Print, Web, and Social media (See downloads below)
• Press releases for local newspapers and television and Much More!
Contact Edrin at the APF office today to request information to be sent to you!

1.866.APF.3635 or email: edrinw@porphyriafoundation.org


Downloads:
To get the downloads go to: http://www.porphyriafoundation.com/content/porphyria-awareness-week-2018

U.S.: Porphyria Awareness Week complete package Includes (each packet can also be downloaded individually)

Print Packet
Web Packet
Social Media Packet: Facebook, Twitter, and Instagram
Email Signatures
Complete Package


International Porphyria Awareness Week Complete package includes (each packet can also be downloaded individually):

Print Packet
Web Packet
Social Media Packet: Facebook, Twitter, and Instagram
Email Signatures
Complete Package

2 comments:

  1. This comment has been removed by a blog administrator.

    ReplyDelete
  2. This comment has been removed by a blog administrator.

    ReplyDelete

Alie Campbell VP

ALIE CAMPBELL PORPHYRIA and ME TYPE OF PORPHYRIA Variegate Porphyria (VP) My story is probably not much different than most. I...