This year, each day we will bring you a member story of each type, a Medical Fact on each type, Medications approved by the FDA at this time, Research opportunities & how ALL PORPHYRIA members are spreading awareness!
Louise Schlosser Braun I'm speaking to the Emergency Room Department and to several Interns at UCI in Orange and Irvine California. I also have a huge burden this year to reach out to hospitals that are not providing the Pan Hematin treatments. I'm finding several patients experiencing this recently. If you have any particular hospitals that you're aware of, please let me know. I'm doing mailings for those out of state and plan to visit a few locally to spread AWARENESS this year!