Thursday, May 3, 2018
Welcome MAY News Reminders
Welcome members to the American Porphyria Foundation Purple Light Blog
Watch for New Members Stories & Interviews
If you would like to share your story please email me Amy@porphyriafoundation.org
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ALIE CAMPBELL PORPHYRIA and ME TYPE OF PORPHYRIA Variegate Porphyria (VP) My story is probably not much different than most. I...
Erythropoietic Protoporphyria What is erythropoietic protoporphyria? The word ‘erythropoietic’ means associated with red blood cells (‘...
#PAW2018 This year, each day we will bring you a member story of each type, a Medical Fact on each type, Medications approved ...