Wednesday, June 27, 2018

EPP Clinical Trial



You can be a medical hero! A new investigational drug for EPP is ready for clinical trial. All we need to begin is
YOU! The trial spots will fill up fast…join now! 

Contact the APF on 1-866-APF-2635 or email
porphyrus@porphyriafoundation.org to be connected to a study site. 


Don’t wait! Remember…Research is the
Key to Your Cure!


An oral investigational drug has been developed with the potential to increase sunlight duration and tolerance in
individuals with EPP. This phase II clinical trial is needed to understand if the investigational drug works and to
ensure that it is safe. The study duration is 24 weeks including follow-up. You must be age 18-70 to participate
and have a confirmed diagnosis of EPP. 

All travel is included and will be arranged by a concierge service.
"Remember...Research is the key to YOUR cure!"


Each Step Toward Finding an Effective Treatment is Important!


No comments:

Post a Comment

Judy Snyder Personal Story of AIP

JUDY SNYDER TYPE OF PORPHYRIA Acute Intermittent Porphyria (AIP) It was early April 1997, and I was truly enjoying my job as the...