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Research is the key to your cure!


Research is the key to your cure! 


What is the most important element in research?

 YOU! 

You now have an opportunity to participate in a trial for a new EPP investigational drug. Contact the APF for details. 

YOU are our hope for the future. Contact the APF on 1-866-APF-3635 or email porphyus@porphyriafoundation.org.

An oral investigational drug has been developed with the potential to increase sunlight duration and tolerance in individuals with EPP. 


This phase II clinical trial is needed to understand if the investigational drug works and to ensure that it is safe. 

The study duration is 24 weeks including follow-up. You must be age 18-70 to participate and have a confirmed diagnosis of EPP. All travel is included and will be arranged by a concierge service.

"Remember...Research is the key to YOUR cure!”


Each Step Toward Finding an Effective Treatment is Important!

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