Thursday, October 18, 2018
Newest PTF Amy Dickey
Last week I was able to teach on porphyria to the internal medicine residents at Massachusetts General Hospital. Below is a link with the video if you’re interested in hearing it. It’s a talk to physicians, so be prepared for lots of medical jargon ☺
I’m a physician at MGH trained in internal medicine, pulmonary, and critical care, and I have EPP. Padmini Pillai who shares at the end is a post-doc in biomedical engineering at MIT, and she has AIP.
ALIE CAMPBELL PORPHYRIA and ME TYPE OF PORPHYRIA Variegate Porphyria (VP) My story is probably not much different than most. I...
Erythropoietic Protoporphyria What is erythropoietic protoporphyria? The word ‘erythropoietic’ means associated with red blood cells (‘...
#PAW2018 This year, each day we will bring you a member story of each type, a Medical Fact on each type, Medications approved ...