This blog is dedicated to all the Porphyria patients worldwide.
The American Porphyria Foundation will provide updates and information here, as well as on the main site - http://porphyriafoundation.org
We are excited to announce that we will launch our newly
updated APF website TOMORROW. It is optimized to offer the patient
community and healthcare professionals easy access to critical content -
written by renowned experts - on all of the porphyrias.
On Thursday, November
1, 2018 you will be able
to access the new website from any browser and on any device at
Thank you to our members, industry partners, and our
brilliant physicians for making this update possible!
Mobile view of the New APF Homepage!
CALENDAR UPDATE: We are a week
into voting and have seen an outstanding response! There is still a week
left so remember to vote for your favorite pet picture and show your
support of the APF. You can visit the APF website and see all of our
amazing entries to pick who you want to see on the cover of the 2019 APF
Pet Calendar! All photos will be included in the calendar though. Happy
23rd - November 8th
Calendars ready for sale and shipping on November 25th!
Starting your holiday shopping? Many of you purchase
numerous items from Amazon. Did you know that your you can support the APF
through the AmazonSmile
program! Amazon donates 0.5% of the price of your eligible AmazonSmile
purchases to the charitable organization of your choice.
Please make the APF your choice of a charitable donation.
Support porphyria while shopping!
Note, this program to provide donations to the APF will ONLY
be available to shoppers who visit Amazon via a special web address,
instead of the normal www.amazon.com
It is easy and free! AmazonSmile is the
same Amazon you know - same products, same prices, same service.
What could it be? Nerve Pain
WHAT IS NEUROPATHIC PAIN?
Neuropathic or nerve pain (NP) is a long-term or chronic pain disease that results from nerve damage. It can be caused by different diseases or conditions. Worldwide nerve pain affects as many as 26 million people. Neuropathic or nerve pain may affect larger areas of the body or it can be restricted to a smaller area, in this case it is called localized neuropathic pain (LNP).
WHAT CAUSES NEUROPATHIC PAIN?
Neuropathic or nerve pain may occur in the absence of an obvious visible cause (e.g. an accident, an injury, a chemical burn). There are several external situations that can directly damage nerves and lead to neuropathic pain, such as: Amputation of a limb (phantom pain, stump pain)Surgery (scar pain, post-surgery pain)Trauma or accident
Neuropathic pain is also a common complication of other diseases, including nerve damage after shingles or herpes zoster infection (postherpetic neuralgia or PHN), nerve damage after HIV infectio…