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Porphyria Post


We are excited to announce that we will launch our newly updated APF website TOMORROW. It is optimized to offer the patient community and healthcare professionals easy access to critical content - written by renowned experts - on all of the porphyrias.

On Thursday, November 1, 2018 you will be able to access the new website from any browser and on any device at

Thank you to our members, industry partners, and our brilliant physicians for making this update possible!

Mobile view of the New APF Homepage!

Pet Calendar Update
CALENDAR UPDATE: We are a week into voting and have seen an outstanding response! There is still a week left so remember to vote for your favorite pet picture and show your support of the APF. You can visit the APF website and see all of our amazing entries to pick who you want to see on the cover of the 2019 APF Pet Calendar! All photos will be included in the calendar though. Happy voting! 

Important Dates:

Voting: October 23rd - November 8th
Calendars ready for sale and shipping on November 25th!

Link to entries on APF Website: APF Website Contest Page

Starting your holiday shopping? Many of you purchase numerous items from Amazon. Did you know that your you can support the APF through the AmazonSmile program! Amazon donates 0.5% of the price of your eligible AmazonSmile purchases to the charitable organization of your choice.

Please make the APF your choice of a charitable donation. Support porphyria while shopping!

Note, this program to provide donations to the APF will ONLY be available to shoppers who visit Amazon via a special web address, namely, instead of the normal homepage.

It is easy and free! AmazonSmile is the same Amazon you know - same products, same prices, same service.

Thank you for supporting us!  Please follow the link: .

Once you are logged in you will see at the top of your screen that you are supporting the American Porphyria Foundation.

Patient Education and Support Meetings coming your way. Contact the APF today to RSVP! We look forward to seeing you there.

Patient Education and Support Meeting - San Francisco

UCSF Medical Center | 505 Parnassus Ave.| Room: S-157| San Francisco, CA 94143
11/11/18 5:30pm - 11/11/18 7:00pm
Seating is limited. Please RSVP Today!!

Patient Education and Support Meeting - San Diego

Double Tree Hotel - San Diego - Hotel Circle | 1515 Hotel Circle South | San Diego, CA 92108 |
12/01/18 6:00pm - 12/01/18 8:00pm
Room: SOLANA | Please RSVP Today! Please note that there will be a Porphyria Specialist on site. We look forward to seeing you there!

Get Involved

Contact Information

Is your contact information up to date?
If not please give us a call @ 866-APF-3635 or Email to

American Porphyria Foundation| 1.866.APF.3635 |


"Remember....Research is the Key to Your Cure!"


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