This blog is dedicated to all the Porphyria patients worldwide.
The American Porphyria Foundation will provide updates and information here, as well as on the main site - http://porphyriafoundation.org
Tuesday, October 2, 2018
CLINUVEL INITIATES VARIEGATE PORPHYRIA PROOF OF CONCEPT STUDY
·Today CLINUVEL announced it has initiated a new clinical trial in variegate porphyria (VP), set to commence in Europe in 2019.