This blog is dedicated to all the Porphyria patients worldwide.
The American Porphyria Foundation will provide updates and information here, as well as on the main site - http://porphyriafoundation.org
It is time is to order your 2019 APF Pet Calendar! Calendars
will feature all of our contest pet submissions along with important dates
and porphyria facts.
Each calendar is $12
for orders shipped in the US. Want to give a gift that gives back? This is
the perfect way to support the porphyria community while brightening the
year of your friends and family. We can ship it to the home of a loved one
with an included gift message. All funds raised support our Protect the
Future program and training up the next generation of porphyria
This is a great chance to support the APF and the future of
porphyria while enjoying 12-months of our furry, fuzzy, and even feathery
If you have not already done so, please take a moment and
bookmark the APF website as one of your favorites! If this is something
that you have done in the past, please remove the old bookmark and replace
it with the newly updated website address.
Meet Shadow Jumper Mitchell FeltsMitchell Felts, age 12 How old were you when you were diagnosed? I was 9 Years old. Do you remember your first flare/reaction? No, I do not recall my first flare & reaction. What did it feel like to you? It was tingling bad on my skin. What things help you feel better? (cool water, ice, shade, bath, clothes) It helps me when I use cold rags and ice packs on my skin. How long does it take before you start to feel better? Sometimes, I start to feel better after the first day, but sometimes it takes 2-3 days or longer to feel better. What kind of clothing/trends do you wear when you go outside or in bad lighting? I can use long sleeves, hats and umbrellas. What is your most favorite sport to play or watch? Do you play it inside or outside? During the day or at night? I enjoy playing baseball late in the day and it feels great to play at night. What ways are you able to adapt to do certain activities outside? I must cover up, its hot outside so I must take breaks to c…