Skip to main content

Who Make Up Our Scientific Advisory Board


Our Scientific Advisory Board is made up of the world's foremost experts in Porphyria management, diagnosis, and research. They have written or approved the medical information on this website.  Many of the American Porphyria Foundation's SAB members have over 40 years experience working on Porphyria - conducting cutting-edge research, and writing peer-reviewed article for major medical journals and authoring the chapters on Porphyria in medical school textbooks.  Doctors worldwide consult with these Porphyria specialists for help with diagnosis and treatment of their patients.
Karl E. Anderson, MD, Chairman
University of Texas Medical Branch
Manisha Balwani, MD
Mount Sinai School of Medicine
D. Montgomery Bissell, MD
University of California
Joseph R. Bloomer, MD
University of Alabama
Herbert L. Bonkovsky, MD
Wake Forest Baptist Medical Center Winston-Salem, North Carolina
Sylvia S. Bottomley, MD
University of Oklahoma
Robert J. Desnick, PhD, MD
Mount Sinai School of Medicine
Micheline M. Mathews-Roth, MD
Harvard University School of Medicine
John Phillips, PhD
University of Utah
Claus A. Pierach, MD
University of Minnesota
Neville Pimstone, MD, PhD
University of California
Maureen B. Poh-Fitzpatrick, MD
University of Tennessee
Steven Shedlofsky, MD
University of Kentucky
Samuel M. Silver, MD, PhD
University of Michigan Medical School
Ashwani Singal, MD
University of Alabama, Birmingham
Manish Thapar, MD
Sidney Kimmel Medical College of Thomas Jefferson University
Peter V. Tishler, MD
Harvard University School of Medicine
Bruce Trippe, MD
Montgomery, AL
Bruce Wang, MD
University of California, San Francisco

Protect the Future

Simon Beaven, MD, PhD
University of California, Los Angeles
Brendan Chen, MD
Mount Sinai School of Medicine
Maria A. de Lima, MD
Rio de Janerio, Brazil
Angelika Erwin, MD
Cleveland, Ohio
Bradley Freilich, MD
Kansas City, Missouri
Eric Gou, MD
University of Texas Medical Branch
Jennifer Guy, MD
University of California, San Francisco
Sajid Jilil, MD
Fargo, North Dakota
Sioban Keel
Seattle Cancer Care Alliance, Univ. WA
Cynthia Levy, MD
University of Miami
Charles Marques Lourenço, MD
University of São Paulo, Brazil
Brendan McGuire, MD
University of Alabama-Birmingham
Sahil Mittal, MD
Houston, Texas
Akshata Moghe, MD, PhD
University of Pittsburgh
John G Quigley
University of Illinois at Chicago
Sean Rudnick, MD
Wake Forest Medical Center
Behnam Saber, MD
Mount Sinai School of Medicine
Jonathan Ungar, MD
Mount Sinai School of Medicine


Popular posts from this blog


GLOBAL PORPHYRIA ALLIANCE The APF is proud to support our members that live across the globe. Many countries around the world have developed organizations to support their local communities. We hope that enjoy the same opportunity to communicate with one another, develop friendships, and learn about porphyria. Here are links to patient advocacy groups worldwide that offer support to individuals impacted by porphyria. Argentina: Centro de investigaciones sobre porfirinas y porfirias | More informationAustralia: Porphyria Association, Inc. | More informationBrazil: Associação Brasileira de Porfiria | More informationCanada: Canadian Association for Porphyria | More informationColombia: Fundación Colombiana Para La Porfiria | More informationDenmark: (Porphyria Association Denmark)Denmark: (Danish Porphyria Support Group)England: British Porphyria AssociationFinland: Finnish Porphyria Support Group France: Association Française des Malades Atteints de Por…


What could it be?
Nerve Pain WHAT IS NEUROPATHIC PAIN? Neuropathic or nerve pain (NP) is a long-term or chronic pain disease that results from nerve damage. It can be caused by different diseases or conditions. Worldwide nerve pain affects as many as 26 million people. Neuropathic or nerve pain may affect larger areas of the body or it can be restricted to a smaller area, in this case it is called localized neuropathic pain (LNP). WHAT CAUSES NEUROPATHIC PAIN? Neuropathic or nerve pain may occur in the absence of an obvious visible cause (e.g. an accident, an injury, a chemical burn). There are several external situations that can directly damage nerves and lead to neuropathic pain, such as: Amputation of a limb (phantom pain, stump pain)Surgery (scar pain, post-surgery pain)Trauma or accident Neuropathic pain is also a common complication of other diseases, including nerve damage after shingles or herpes zoster infection (postherpetic neuralgia or PHN), nerve damage after HIV infectio…

Happy Winter Season!

                  Happy Winter Season!