Friday, February 15, 2019

Porphyria Post

February 16, 2019

Coming to a city near you!!

Patient Education and Support Meetings
Throughout 2019 the APF will be hosting a dozen Patient Education and Support Meetings across the country. This is a remarkable opportunity to meet fellow porphyria patients and families to share similar experiences. Porphyria experts will also be present at each event either in person or via Skype.

RSVP below to our Phoenix, Ann Arbor, Seattle, Boston, Salt Lake City, and Placentia, CA meetings.

Be on the lookout for more details regarding the upcoming meetings below!

Birmingham, AL
New York, NY
Winston- Salem, NC
Chicago, IL
Orlando, FL

Interested in hosting a meeting in your town? Contact Edrin Williams, Director or Patient Services, at edrinw@porphyriafoundation.org.

RSVP Today

Patient Education and Support Meeting- Phoenix

LOCATION
Holiday Inn & Suites Phoenix Airport
DATE AND TIME
02/23/19 1:00pm - 02/23/19 3:00pm
3220 S. 48th Street | Phoenix, AZ | Room: Scottsdale | Family and friends are welcome to attend!

Patient Education and Support Meeting- Ann Arbor

LOCATION
Holiday Inn
DATE AND TIME
03/16/19 1:00pm - 03/16/19 3:00pm
3600 Plymouth Road | Ann Arbor, MI | Room: Wolverine A | Family and friends are welcome to attend!

Patient Education and Support Meeting- Seattle

LOCATION
Seattle Public Library- Central
DATE AND TIME
04/04/19 5:30pm - 04/04/19 7:30pm
1000 Fourth Avenue| Seattle, WA | Room: Washington Mutual | Level: 4 | Family and friends are welcome to attend!

Patient Education and Support Meeting- Boston

LOCATION
Morrill Memorial Library
DATE AND TIME
04/06/19 2:00pm - 04/06/19 6:00pm
33 Walpole Street| Norwood, MA | Room: Simoni | Family and friends are welcome to attend!

Patient Education and Support Meeting- Placentia, CA

LOCATION
Home of Louise Schlosser Braun
DATE AND TIME
04/27/19 11:00am - 04/27/19 1:00pm
Refreshments will be provided | RSVP for address and additional Information | Family and friends are welcome to attend!

Patient Education and Support Meeting- Salt Lake City

LOCATION
University of Utah- University Guest House and Conference Center
DATE AND TIME
05/31/19 5:00pm - 05/31/19 7:00pm
110 S. Fort Douglas Blvd | Salt Lake City, UT | Room: Bonneville | Family and friends are welcome to attend!

Contact Information

Is your contact information up to date?
If not please give us a call @ 866-APF-3635 or Email to porphyrus@porphyriafoundation.com


American Porphyria Foundation| 1.866.APF.3635 | porphyriafoundation.org

STAY CONNECTED

"Remember....Research is the Key to Your Cure!"









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Judy Snyder Personal Story of AIP

JUDY SNYDER TYPE OF PORPHYRIA Acute Intermittent Porphyria (AIP) It was early April 1997, and I was truly enjoying my job as the...