Skip to main content

Pakistan Ambassador Abdul Waheed Butt with CEP

ABDUL WAHEED BUTT

Abdul%20Waheed%20Butt.jpgMy name is Abdul Waheed Butt. I lived in Pakistan I am facing skin problem name “Congenital Erythropoietic Porphyria (Gunther Disease) CEP. When I was born, I was completely normal like other children. When I was 2-months-old, my mother cut my hand nails there are starting water from it. When the nails water touch my face it becomes Water Blisters on my whole face. My parents checked me from so many Doctors in Pakistan, but they have no idea or treatment how to solve that problem. At-last, we found a skin specialist Dr. Ishfaq Ahmed who said that the disease name is CEP. He advised me to avoid sunlight and covered when I go out. The only treatment of this disease is to avoid sunlight. Then my parents covered me all the time for my safety as they can.
When I was 7-years-old the effect of the disease is gradually decreased and the Blisters which are appeared automatically are disappeared. But there are so many scars on my face and hands.
After that I am starting my study and completed my Graduation degree in Commerce. During my study I have facing so many problems from classmates, when they see me, they behave like that I am not a human or came from other planet.
After graduation I have done my computer course and using internet, I find skin Specialist Doctors in all over the world and send them my pictures and story to review my case. Approximately five years of regular struggle I have received a call of Miss Desiree Lyon from America. She tells me about the details of the disease and advise me to avoid sunlight as you can. Then my Story and pic is displayed on APF website and add my name in Facebook APF Group. In this group I make lots of friends who have CEP and EPP.
APF send me a doctor kit for my blood and urine test to clarify that my disease name after test the report result is CEP.
Now my age is 30 and I am working as Computer Clerk in Medical College in Pakistan. I have so many friends in Facebook it is so useful for all CEP members for discussed their problem and get a fair advised from each other’s. I will be sure that the treatment of the disease is discovered by the help of God and we all get the treatment soon.
God said that “There is no disease in the Earth without Cure”
And last, I would like to thank again the APF, Desiree Lyon and Amy Chapman who help me. Thank you so much.
Abdul Waheed Butt
House no CB 408, St no 16, Jhanda Chichi
Rawalpindi, Pakistan
00923325458654
waheed_butt98@yahoo.com

Comments

Popular posts from this blog

GLOBAL PORPHYRIA ALLIANCE

GLOBAL PORPHYRIA ALLIANCE The APF is proud to support our members that live across the globe. Many countries around the world have developed organizations to support their local communities. We hope that enjoy the same opportunity to communicate with one another, develop friendships, and learn about porphyria. Here are links to patient advocacy groups worldwide that offer support to individuals impacted by porphyria. Argentina: Centro de investigaciones sobre porfirinas y porfirias | More informationAustralia: Porphyria Association, Inc. | More informationBrazil: Associação Brasileira de Porfiria | More informationCanada: Canadian Association for Porphyria | More informationColombia: Fundación Colombiana Para La Porfiria | More informationDenmark: Porfyriforeningen.dk (Porphyria Association Denmark)Denmark: Porfyrier.dk (Danish Porphyria Support Group)England: British Porphyria AssociationFinland: Finnish Porphyria Support Group France: Association Française des Malades Atteints de Por…

WHAT IS NEUROPATHIC PAIN?

What could it be?
Nerve Pain WHAT IS NEUROPATHIC PAIN? Neuropathic or nerve pain (NP) is a long-term or chronic pain disease that results from nerve damage. It can be caused by different diseases or conditions. Worldwide nerve pain affects as many as 26 million people. Neuropathic or nerve pain may affect larger areas of the body or it can be restricted to a smaller area, in this case it is called localized neuropathic pain (LNP). WHAT CAUSES NEUROPATHIC PAIN? Neuropathic or nerve pain may occur in the absence of an obvious visible cause (e.g. an accident, an injury, a chemical burn). There are several external situations that can directly damage nerves and lead to neuropathic pain, such as: Amputation of a limb (phantom pain, stump pain)Surgery (scar pain, post-surgery pain)Trauma or accident Neuropathic pain is also a common complication of other diseases, including nerve damage after shingles or herpes zoster infection (postherpetic neuralgia or PHN), nerve damage after HIV infectio…

Happy Winter Season!

                  Happy Winter Season!