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Medical Moment: Panhematin® Access
Are you lacking access to Panhematin? Does your health system refuse to pay for Panhematin?  Is your physician aware of the importance of early treatment? We need to know.
Panhematin® is the only FDA approved treatment for acute porphyria attacks, and we want to make sure that EVERYONE with an acute porphyria (AIP, VP & HCP) has access. Unfortunately, FDA approval doesn’t ensure access. Patients have fallen victim of the bureaucracy inside the Center for Medicare and Medicaid Services (CMS), whose policies effectively discourage treatment with Panhematin® in the hospital setting that is recommended by physicians.  We want to help healthcare providers secure access to Panhematin® at their preferred health facility.
We know patients who are being denied this treatment from some hospitals and directed to secure another healthcare provider. If this has happened to you or someone you know or care for, please contact us at the APF office. We could help by assisting you contact your local and state representatives and health advocacy organizations. We understand the debilitating effects of acute porphyria and hope these resources will help you secure access to Panhematin® when you need it most.
APF – 1.866.APF.3635 or 301.347.7166

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