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Medical Moment: Patient/Physician Relationship

Medical Moment: Patient/Physician Relationship

We all want a great relationship with our doctors, right? You, as the patient have a responsibility to establish a solid rapport with your physician and other members of the healthcare team. This can have a positive impact on the quality of care and better access to treatment. Yes, there could be a stigma associated with having Porphyria but don’t let it stop you from receiving the proper treatment that you deserve. Communication is KEY! Below you will find some key elements and tips that will not only prepare you for your visit with your doctor, but also build a strong relationship.
Here are a few tips for your doctor’s visit:
1. Plan – Be prepared! Prepare your questions and concerns beforehand. You want to be courteous of your physician’s time with you.
2. Make a list – Make a list of your questions, concerns and any other relating information.
3. Communication is key – Make sure that you understand fully what the doctor is explaining/advising. If you do not understand, SPEAK UP!
4. Access to Care Toolkit – Download our recently updated “Conversation Tracker”. This document is helpful to keep detailed records of your conversations and interactions with doctors, nurses, counselors, and any other healthcare staff.
Share with us ways you’ve improved your relationship with your doctor? Comment below.

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Q & A WITH PORPHYRIA EXPERT, DR. BRUCE WANG, UCSF

Q & A WITH PORPHYRIA EXPERT, DR. BRUCE WANG, UCSF 
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 The following questions were submitted to Dr. Wang for his responses ... Q. Does EPP give us bad teeth? Also, do people with EPP get stomach pains or is that with the other porphyias? A. The porphyrin that accumulates in EPP patients is protoporphyrin IX, which does not cause discoloration to teeth or abdominal pain.
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