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Patient Education Programs

Patient Education Programs

The American Porphyria Foundation is dedicated to the health and well-being of individuals affected by Porphyria. One way that the APF does this is by Patient Education Programs

  • Maintain, update, and expand comprehensive website, brochures, pamphlets, books and educational materials for each type of porphyria, genetics and research.
  • Develop new educational programs and services for purposes of research, treatment, diagnosis.
  • Distribute materials on porphyria treatment
  • Engage and assist in Health Insurance assistance and billing problems
  • Update relevant new information 
  • Update on RESEARCH- ALL THE TIME
  • Participate in convention exhibits
  • Develop & deliver patient education programs for physician relationships
  • Educate the FDA drug approval process
  • Educate on congressionional process
  • Promote research process and participation
  • Arrange conference calls with experts
  • Provide expert consultation with patients and physicians
Members, 

We cant do this alone.  If you need any type of help or services please call the APF, we are happy to assist you! 1.866.APF.3635



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