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Physician Education Packets

Physician Education Packets –

Did you know that the APF will send a complimentary physician education packet to any of your treating doctors? Primary Care, Internist, Family Medicine, Hematologist, Oncologist, Gastroenterologist, etc..

If you want all your physicians invested in your care, let us help you educate them about porphyria. These complimentary packets are tailored to be specific to your type of Porphyria.  As an example, the acute porphyria packets include information about the intensity of acute porphyria pain.  The EPP packet includes information on the visible spectrum of light triggering phototoxicity.  Email Edrin Williams, Director of Patient Services to request your packet(s) to be sent today! Please include their name and physical location.


Edrin R. Williams, MHSA
Director of Patient Services
American Porphyria Foundation 
4915 St. Elmo Ave.,Suite 200
Bethesda, MD 20814
301.347.7166 office email


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Mitchell FeltsMitchell Felts, age 12 How old were you when you were diagnosed?
I was 9 Years old. Do you remember your first flare/reaction?
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