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Porphyria Post

October 3, 2019

Porphyria Post

Rare Disease Week on Capitol Hill
Travel Stipend Application

Submissions are being accepted for travel stipends to attend the 2020 Rare Disease Week on Capitol Hill! We would love to have the Porphyria community represented this year in Washington, DC. This event brings together hundreds of patients, patient advocates, industry leaders and more. Please submit your scholarship application today, as the portal will close on December 2, 2019.

Please note: Travel stipends are available up to $800.00. Registration for patients and patient advocates is free, however, you must pay for your hotel and travel costs out of pocket. The APF/EveryLife Foundation is not responsible for making these arrangements. Stipend recipients are required to attend the Legislative Conference on February 26th and the Hill Day on February 27th but may attend the other events as well. Limit one travel stipend per family can be awarded. 


Patient Education and Support Meeting - Orlando

Hilton Garden Inn, Poseidon/Neptune Room, Orlando at SeaWorld 6850 Westwood Blvd, Orlando, FL 32821
12/08/19 6:30pm - 12/08/19 8:30pm
The American Porphyria Foundation will be hosting a Patient Education and Support Meeting in Orlando, FL on Sunday, December 8. RSVP TODAY!

Patient Education and Support Meeting - Boston

Boston Marriott Copley Place
11/10/19 5:00pm - 11/10/19 7:00pm
The American Porphyria Foundation will be hosting a Patient Education and Support Meeting in Boston, MA on Sunday, November 10. RSVP TODAY!

Get Involved

Contact Information

Is your contact information up to date?
If not please give us a call @ 866-APF-3635 or Email to

American Porphyria Foundation| 1.866.APF.3635 |


"Remember....Research is the Key to Your Cure!"


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