We need your help! The APF has created an extensive list of physicians around the world who are treating with people with Porphyria. This list helps when people from around the world contact the APF needing assistance finding a knowledgeable physician. YOU can help patients everywhere by sharing with us the name and location of your physician. Comment on this post, PM Edrin Williams, APF Director of Patient Services or call the APF office at 301.347.7166 to give us their information. Thank you!
This blog is dedicated to all the Porphyria patients worldwide. The American Porphyria Foundation will provide updates and information here, as well as on the main site - http://porphyriafoundation.org