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Dr. Wang is going LIVE in 5 days! Join the Porphyria- American Porphyria Foundation

Dr. Wang is going LIVE in 5 days!
Join the Porphyria- American Porphyria Foundation

YOU MUST BE A MEMBER OF THE OPEN APF FB GROUP!
Head there now so you will be all set to listen in and ask your questions for December 4, 7-8pm EST and December 5, 1-2pm EST!


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Meet Shadow Jumper Mitchell Felts

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Mitchell FeltsMitchell Felts, age 12 How old were you when you were diagnosed?
I was 9 Years old. Do you remember your first flare/reaction?
No, I do not recall my first flare & reaction. What did it feel like to you?
It was tingling bad on my skin. What things help you feel better? (cool water, ice, shade, bath, clothes)
It helps me when I use cold rags and ice packs on my skin. How long does it take before you start to feel better?
Sometimes, I start to feel better after the first day, but sometimes it takes 2-3 days or longer to feel better. What kind of clothing/trends do you wear when you go outside or in bad lighting?
I can use long sleeves, hats and umbrellas. What is your most favorite sport to play or watch? Do you play it inside or outside? During the day or at night?
I enjoy playing baseball late in the day and it feels great to play at night. What ways are you able to adapt to do certain activities outside?
I must cover up, its hot outside so I must take breaks to c…