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Facebook Live with Dr. Bruce Wang

Facebook Live with Dr. Bruce Wang

MARK YOUR CALENDARS!
Wednesday, December 4, 7-8 pm EST
&
Thursday, December 5, 1-2 pm EST

The APF will be holding two Question and Answer Facebook Live sessions with Porphyria expert Dr. Bruce Wang, of the University of California, San Francisco Porphyria Center.

We are very excited and appreciative of Dr. Wang for sharing his expertise with our community. These will be exceptional sessions that you won't want to miss!

To Join Dr. Wang's Session Click on our Facebook Link: https://www.facebook.com/AmericanPorphyriaFoundation/

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Q & A WITH PORPHYRIA EXPERT, DR. BRUCE WANG, UCSF

Q & A WITH PORPHYRIA EXPERT, DR. BRUCE WANG, UCSF 
The APF asked our Facebook friends for their top questions they would ask a porphyria expert.
 The following questions were submitted to Dr. Wang for his responses ... Q. Does EPP give us bad teeth? Also, do people with EPP get stomach pains or is that with the other porphyias? A. The porphyrin that accumulates in EPP patients is protoporphyrin IX, which does not cause discoloration to teeth or abdominal pain.
 The type of porphyria that leads to discolored teeth is Congenital Erythropoietic Protoporphyria. The porphyrias that lead to episodic abdominal pain attacks are the acute hepatic porphyrias. Q. I have EPP and I have a severe reaction on my hands and lips. Do I seek urgent care? Also, what can you even do when you burn your lips? A. The acute reactions to sunlight in EPP can be very severe and, unfortunately, there are not many effective options to treat the symptoms. Nonsteroidal anti-inflammatory drugs (NSAIDS such as ibup…